Pain and other symptoms related to your life-limiting
illness almost always can be managed effectively. Talk to your doctor and family about the
symptoms you are experiencing. Your family is an important link between you and
your doctor. Have a loved one report your pain if your illness prevents you
from communicating. Usually it is possible to manage pain and other symptoms so that
you are comfortable.
If you and your doctor are not able to control your pain, ask about seeing a pain management specialist. This is a doctor who finds ways to treat pain that won't go away.
Guidelines from the Joint Commission on
Accreditation of Healthcare Organizations (JCAHO) state that pain must be
assessed and controlled for people in hospitals and nursing homes.1
Many medicines are available to
relieve pain. Your doctor will choose the easiest and most noninvasive form of
medicine to treat your level of pain. Medicines taken by mouth (oral) are
usually used first, because they are easier to take and are usually less
expensive than other forms of medicines. If your pain is not severe, medicines
that help to reduce pain and swelling can be purchased without a prescription.
These medicines include acetaminophen and
nonsteroidal anti-inflammatory drugs (NSAIDs), such as
aspirin or ibuprofen. It is important to "stay ahead" of your pain by taking
your pain medicines on a regular schedule. Not routinely taking pain medicines
is a common cause of ineffective pain management.
Pain that is not
controlled by nonprescription medicines may need stronger forms of treatment.
Pain medicines such as codeine, morphine, or fentanyl may be prescribed by your
doctor. These medicines may be combined with others, such as nonsteroidal
anti-inflammatory drugs or antidepressants, to manage your pain.
Pain medicines can be given by mouth, such as pills, or as drops placed under the tongue (sublingual). Medicines may be given by injection, by IV, or through patches placed on the skin (transdermal patches). Sometimes medicines are put into the space next to the spine (such as epidurals). Other medicines are put under the lining of the spinal cord (intrathecal).
In some cases, medicines can be given so you can get more medicine when you need it. This is called patient-controlled anesthesia, or PCA.
Many people who have pain caused by a life-limiting illness are concerned
about becoming addicted to pain medicines. Addiction usually is not an issue in
people with a terminal illness. If your pain or illness improves, your doctor will slowly lower the amount you are getting until your body no longer needs the medicine.
It is possible to use pain medicines to effectively manage your pain and
keep it at a level that you find tolerable. But it may not be possible to
completely relieve your pain without making you sleepy. You might choose to
have a certain amount of pain in order to be fully awake and alert. On the
other hand, wakefulness may not be important to you and you may not be bothered
by the sleepiness that accompanies some pain medicines.
The key to
effective pain management is to take your pain medicine on a routine schedule,
not "as needed." But even with a routine schedule of pain medicine, there may
be times when you have pain that is worse than normal. This is called
"breakthrough pain." Talk with your doctor about medicines you should have on
hand to be prepared for breakthrough pain. And always talk to your doctor
before going off your pain medicine. Suddenly stopping pain medicine may cause
serious side effects and severe pain.
Talk to your doctor about
methods of pain control without medicine. Complementary and alternative
medicine therapies may provide pain relief and relaxation for some people. You
may be able to complement conventional medical treatment with one of these
- Acupuncture to relieve pain
- Aromatherapy to promote relaxation
- Meditation or yoga to relieve stress
- Light massage (not deep tissue or intense pressure) or biofeedback to ease tension
Before you try a complementary therapy, talk to your doctor about the possible value and potential side effects. Let your doctor know if you are already using any such therapies. Complementary therapies are not meant to take the place of standard medical treatment. But they may help ease symptoms and pain and improve your quality of life.
For more information about pain management, see the topic
It is normal to experience
emotional distress for a limited period of time as you learn to cope with your
illness. But depression lasting more than 2 weeks is not normal and should be
reported to your doctor. Depression is treatable, even when facing a
life-limiting illness. Antidepressants, as well as counseling, are available to
manage the emotional suffering you may experience.
Talk to your
doctor and family if you are experiencing emotional distress. Although grieving
is a normal part of the dying process, do not feel that you must endure great
emotional pain. Emotional suffering can intensify any physical pain you may be
having. It can also decrease your ability to work on important
relationships and say good-bye to family and friends.
You may experience other symptoms as
your death nears. Talk to your doctor about what symptoms may develop. Symptoms
such as nausea, fatigue, constipation, or shortness of breath can be managed
effectively with medicines, diet changes, or oxygen therapy. Have a family
member or friend help you describe your symptoms to your doctor or hospice
worker. Keeping a journal may be a helpful way of keeping track of your various
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National Pharmaceutical Council (NPC), Joint Commission on Accreditation of Healthcare Organizations (JCAHO) (2001, with 2005 update). Pain: Current understanding of assessment, management, and treatments. Available online: http://www.npcnow.org/App_Themes/Public/pdf/Issues/pub_related_research/pub_quality_care/Pain-Current-Understanding-of-Assessment-Management-and-Treatments.pdf.